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首页> 外文OA文献 >Cancer Patient Experience in the Teenage Young Adult Population: Key issues and trends over time. An analysis of the national UK National Cancer Patient Experience Surveys 2010 – 2014
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Cancer Patient Experience in the Teenage Young Adult Population: Key issues and trends over time. An analysis of the national UK National Cancer Patient Experience Surveys 2010 – 2014

机译：青少年青少年人群中的癌症患者经历：一段时间内的关键问题和趋势。 2010 - 2014年全国英国国家癌症患者体验调查分析

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Improving outcomes for teenagers and young adults (TYA) with cancer is a key element of the national cancer strategy in England. Recognition of the unique needs of this group has led to the development of recommendations for specific models of care and delivery of this care through the provision of dedicated clinical units in principal treatment centers (PTCs) across the United Kingdom. The aim of this study was to understand the current cancer patient experience for this patient group. We aimed to determine whether treatment experience is influenced by place of treatment and whether it has changed over time using patient-reported data from national cancer patient experience surveys. This study highlights that a prolonged pathway to diagnosis remains an issue for the TYA group and identifies areas on which quality improvement measures for TYA services should focus, including communication and involvement of the patient in treatment decisions. Positive experiences for the TYA group such as involvement in research were also highlighted. Treatment within a TYA PTC was associated with positive patient perception in a number of key areas highlighting the need for future studies to fully elucidate the impact of the full range of TYA services now available in the United Kingdom on both patient experience and outcome.
机译：改善患有癌症的青少年（TYA）的结果是英国国家癌症战略的关键要素。对这一群体独特需求的认识导致通过在英国主要治疗中心（PTC）提供专门的临床部门，为特殊护理模式和这种护理提供了建议。这项研究的目的是了解该患者组当前的癌症患者经验。我们旨在使用国家癌症患者经验调查的患者报告数据来确定治疗经验是否受治疗地点影响以及它是否随着时间而改变。这项研究强调，延长诊断路径仍然是TYA组的一个问题，并确定了TYA服务质量改进措施应重点关注的领域，包括患者的沟通和患者参与治疗决策。还重点介绍了TYA组的积极经验，例如参与研究。 TYA PTC内的治疗与患者在多个关键领域的积极感觉相关，这凸显了未来研究的必要性，以充分阐明英国目前可用的所有TYA服务对患者经验和结果的影响。

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